Social and Policy Impact of the Research

Discover the impact this new research project into sickle cell and the issues faced by children at school with the disorder has had both internationally and in the media.

Influencing Policy

Two members of the team were invited to address the All Party Parliamentary Group (APPG) on Sickle Cell and Thalassaemia (under Dianne Abbott, MP) Portcullis House, Westminster 25th March 2009. A report of the meeting was published from this meeting.

The Social Aspects of Sickle Cell Disease and Thalassaemia in Young People

Two members of the team were invited to address the Parliamentary Health Committee (under Kevin Barron, MP) Portcullis House, Westminster on 2 November 2009.

A member of the team was invited to speak atthe All Party Parliamentary Group (APPG) on Sickle Cell and ThalassaemiaHouse of Commons, Westminster 30th November 2010 in order to brief the newly reconfigured Department of Education on the research findings.

Media Coverage

The research project received considerable coverage in the media:

BBC Radio 4 Case Notes September
[Minute 07.00 to minute 11.15 within overall 30 minute programme]

BBC Newsround 2 July 2009

The Voice 22 - 28 June 2009

Medical News Today 18 June 2009

International Impact

The research was the subject of several invited presentations to international audiences including:

Public Health Webinar Series on Hemoglobinopathies Centers for Disease Control and Prevention, Atlanta, Georgia, USA, 27th January 2011.

First International Congress on Sickle Cell, Accra, Ghana, West Africa, 20-23rd July 2010

Center for Disease Control and Prevention, Atlanta, Georgia, USA, 18th December 2009.

Black Health Alliance, Scarborough Civic Center, Ontario, Canada, 20-21 November 2009.

Sickle Cell Disease Association of America 37th Annual Convention: Orlando, Florida, USA 30 September - 3 October 2009.

Sickle Cell Disease Association of Ontario, Harbourfront Community Centre, Toronto, Canada, 4 October 2008.