The Research Evidence

A project to examine the issues facing young people at school who live with sickle cell disorder was funded by the Economic and Social Research Council (Grant Number RES-000-23-1486) and ran from 2006 to 2011.

Project Summary

Sickle cell disease (SCD) is the collective name for a number of inherited blood conditions that mainly affect people of African, Caribbean, Middle Eastern, South Asian, and Mediterranean descent. Clinical manifestations include episodes of chronic and acute pain, and strokes. The known number of people living with SCD will increase from the current estimate of 15,000 over the next decade as all newborn infants and most pregnant mothers will be screened for SCD. Prior to this research little was known about the impact of sickle cell on the educational experiences of young people.

Education and Young People with Sickle Cell (research summary)

Professor Simon Dyson on the Experiences of Young People with Sickle Cell at School.

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