Resources and Information

Please feel free to access the following Sicke Cell resources:

About Sickle Cell Organisations in the UK

• SCOOTER (Sickle Cell Open - Online Topics and Educational Resources)
• The Sickle Cell Society
• Organisation for Sickle Cell Anaemia Research OSCAR Birmingham
• OSCAR Sandwell 
• OSCAR Bristol 
• Sickle Cell Young Stroke Survivors 
• Broken Silence 

About Thalassaemia 
Thalassaemia is another serious inherited blood condition affecting young people at school. United Kingdom Thalassaemia Society 

Sickle Cell Videos for Schools

• Were you absent from school because of sickle cell and how did it effect you? 
• At school were you ever called lazy? 
• Having sickle cell and the physical pain did it cause problems in school?
• Were you ever made to do Physical Education?
• At school were you prevented from going to the toilet in school? 
• Were you ever prevented from drinking water in class?

Useful Articles:

• Dyson, SM; Atkin, K; Culley, LA; Dyson, SE and Evans, H (2011) Sickle cell, habitual dyspositions and fragile dispositions: young people with sickle cell at school Sociology of Health and Illness 33 (3): 465-483. 33 (3): 465-483.
• Dyson, SM and Atkin, K (2011) Sickle cell and thalassaemia: global public health issues come of age. Ethnicity and Health 16 (4-5) 299-311.
• Dennis-Antwi, JA; Culley, L; Hiles, D and Dyson, SM (2011) “I can die today, I can die tomorrow”: Lay perceptions of sickle cell disease in Kumasi, Ghana at a point of transition Ethnicity and Health 16 (4-5): 465-481. 

United Nations – National Sickle Cell Day
The United Nations has designated June 19th each year as Sickle Cell Day. As part of this global initiative on sickle cell, De Montfort University has been working with experts on to research the experiences of young people with sickle cell in education.