Sickle cell education

Education of Minority Ethnic Pupils: Young People with Sickle Cell Disease.

A team of researchers at De Montfort University, University of York and Loughborough University were funded by the Economic and Social Research Council to report on the experiences of young people with sickle cell disorders in the education system in a multi-method study between 2006 and 2011.

Sickle Cell Disease

Sickle Cell Disease (SCD) is the collective name for a number of inherited blood conditions that mainly affect people of African, Caribbean, Middle Eastern, South Asian, and Mediterranean descent. Clinical manifestations include episodes of chronic and acute pain, and strokes. The known number of people living with SCD will increase from the current estimate of 15,000 over the next decade as all newborn infants and most pregnant mothers will be screened for SCD. Prior to this research little was known about the impact of sickle cell on the educational experiences of young people.